Welcome to The Raw Side of Rare. I’m Rowdie’s mom — a medical mom, advocate, and storyteller navigating life through rare chronic battles. This space was created to share the honest, unfiltered side of our journey — the tubes, the tears, the triumphs, and everything in between.

For years, our world has revolved around hospital halls, specialist appointments, and the endless hope for better days. But beyond the diagnoses and procedures, there’s laughter, strength, and love that keeps us moving forward.

Through The Raw Side of Rare, I hope to connect with other parents walking similar paths — those who understand what it’s like to fight for your child’s health while trying to hold everything else together. This isn’t just our medical story; it’s a story of resilience, faith, and the power of a mother’s love.

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