The Raw Side of Rare: Hope, Hustle & Rowdie’s Hospital Halls. Unfiltered Mom Life, Medical Edition
A mother’s unfiltered journey through the tubes, tears, and triumph of rare chronic battles.
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Home from the hospital tonight.We’re starting a whole new journey. It seems like every time one compression is fixed, another one shows up — this time, it’s her Nutcracker Syndrome.Basically, her left renal vein is being compressed, which causes a lot of pain and other symptoms. We’re now starting with a new team of doctors…
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💜 This picture is full of Warriors 💜 Every single one of these girls is fighting SMAS — each with her own unique story, her own struggles, and her own incredible strength. All of them have either recently had or are here having SMAS surgery, the same one Rowdie had back in July here at…
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That sinking feeling in your stomach… the one that hits when you just know your kid is starting to suffer again. The signs are there — the pain, the exhaustion, the look in their eyes that tells you something isn’t right. And as a mom, you just know. Tomorrow, we head back to the doctor. Another long…
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Today marks 12 weeks since Rowdie’s SMAS surgery (Alvear-Fowlkes-Stephenson procedure) at Texas Children’s Hospital in Austin, TX — and what an incredible 12 weeks it’s been. 💛 She is officially 8 weeks tube-free after being on a feeding tube for over a year — and she’s gained 11 pounds since surgery! 🙌 Of course, healing from such a major surgery takes time. She…
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The pain, the tears, and the smiles hiding it allBy Kristie Fettig People often see the smiles in the photos — the brave little girl with bright eyes, the mom holding it together, the family doing their best to make life look normal. But what they don’t see is the raw side of rare. They…
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Raising a child is never simple — but raising a child with a rare disease changes everything you thought you knew about parenting. It’s doctors instead of playdates.Hospitals instead of parks.Questions instead of answers. When you’re the parent of a “rare disease girl,” life feels like living in two worlds. On one side is the…
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When you become a parent, you expect scraped knees and colds — not endless questions without answers. But when your two-year-old starts clutching her stomach after eating, saying, “My tummy hurts,” you know something isn’t right. That’s how it began with Rowdie. Just two years old and already in pain every time she ate. At…
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Welcome to The Raw Side of Rare. I’m Rowdie’s mom — a medical mom, advocate, and storyteller navigating life through rare chronic battles. This space was created to share the honest, unfiltered side of our journey — the tubes, the tears, the triumphs, and everything in between. For years, our world has revolved around hospital halls,…
The Raw Side of Rare: Hope, Hustle & Rowdie’s Hospital Halls. Unfiltered Mom Life, Medical Edition 